Doctor: In The Beginning, He Dug Out His Heart With His Bare Hands, Frightening Fang Xiaoran
057:Special Drugs For Rare Diseases
"Doctor! What's wrong with the child now? Please save him!"
Li Nan's father suddenly panicked when he saw his child's current condition.
Looking at Ouyang Yulu nervously
"Don't worry. We now highly suspect that the child has a rare disease called Fabry disease. We are currently conducting a puncture test on his kidneys. It will take some time to get the results before we can make a final judgment."
Apparently Li Nan's father had never heard of this disease.
"Doctor, what kind of disease is this? Why have I never heard of it?"
Ouyang Yulu sighed and said
"This disease is indeed very rare, with an incidence rate of only one in 100,000, but it is hereditary. I just heard you say that the child's mother and brother both died of kidney disease?"
At this point, Li Nan's father began to burst into tears.
"That's right! The child's mother left when the two children were very young. At that time, the family's finances were relatively difficult and she never went to a big hospital. Before, when she felt uncomfortable, she would just prescribe some medicine in the town. Later, when I couldn't bear it anymore, I went to the hospital for a check-up and they said it was kidney failure. The mother of the child passed away not long after, and Nannan's brother was already in good health. During his physical examination a few years ago, he was told that he needed a kidney transplant because of uremia. Later, the child passed away and was only 16 years old! Because of him, I already owed a lot of foreign debt. In the past two years, I just wanted to pay off the foreign debt and neglected to take care of him. Why is this child starting to get sick again! "
Shen Hao comforted Li Nan's father a little and then said
"Now it seems that the child's mother and brother are very likely to have Fabry disease, but the testing level at that time was insufficient or the hospital's quality was hindered. This rare disease was mistakenly classified as a common kidney disease, Fabry disease. In the later stages, it usually manifests as kidney disease."
"Now that the doctor knows this disease, can he cure the child? I only have Nannan left now! Please, please."
Li Nan's father took Shen Hao's hands and looked at Shen Hao with longing eyes.
Although the reality is cruel, we still have to tell him the actual situation.
"Because this disease is caused by a genetic defect, there is currently no way to cure it. It can only be maintained by injecting specific drugs!"
After listening to Shen Hao’s words,
Li Nan's father quickly spoke:
"Then give Nannan this medicine!"
At this time, Director Yu stepped forward and said to Li Nan’s father
"That's right. We still have to wait for various pathology reports to come out before we can determine whether the child has Fabry disease. If unfortunately it really is Fabry disease, Brother Li, you must be mentally prepared."
I heard Director Yu say that I need to be mentally prepared.
Li Nan's father could clearly see that the muscles at the corners of his mouth began to twitch, but he still tried his best to control his emotions.
"What do you say, doctor?"
Director Yu thought for a while and said
"Special medicines for this disease are relatively expensive at the moment, costing more than 10,000 yuan each. If you really need to inject them, you have to inject 3 injections at a time, and you have to inject them once every two weeks. This adds up to a cost of at least 1 million or more per year!" And I can’t use medical insurance.”
Hearing this number,
Li Nan's father staggered and almost stopped.
But he spoke immediately
"If it can save his life, let it be used by the child. Anyway, I will try my best to protect him as long as I can. The child will be an adult soon. When I can't save him, he will have to rely on himself."
At this time, the results of the kidney puncture performed on Li Nan by the nephrology department also came out.
Ouyang Yulu quickly checked her phone and read out the report.
"The intracytoplasmic process of cells under electron microscope shows starving zebra bodies"
"That's right, Li Nan has Fabry disease."
Shen Hao said with certainty
This is a heavy result, which makes the family's already poor conditions even worse.
Originally, Li Nan's father and children had been working away from home for many years to pay for the foreign debts left by his brother's medical treatment. Now that the situation is like this, I don't know how this family can bear it.
"Oh! I made a new discovery!"
Ouyang Yulu seemed to have discovered something new while using her cell phone.
"Look at this news! Now this drug seems to be in the process of negotiation to enter the medical insurance catalog. The price is expected to be reduced from the original 12,000 yuan to more than 3,000 yuan! By then, after reimbursement, the drug cost for a year will be about 50,000 yuan. and it is expected to be negotiated within the year.”
This is a bit of good news in despair.
Hearing this news,
Li Nan's father's eyes suddenly lit up.
But at this moment,
Li Nan, whose physical condition was relatively stable just now, is in bad condition again.
The vital sign monitoring equipment began to continuously alarm again.
All indices are continuing to decline.
"No way, if this continues, we have to inject him with special medicine right away, otherwise I don't think he can survive."
Shen Hao said, looking at Li Nan's current physiological indexes.
"But our Dongli Hospital does not have this kind of drug, or even the whole of Dongjiang. After all, Dongjiang has not had this rare case before, and the price of this drug is high, so there is no reserve at all!"
"Don't worry, Director Yu is comforting Li Nan's father. I will call various hospitals in Dongjiang now to see if they have it!"
"I'll also ask in my various doctors' work groups!"
Ouyang Yulu also started to contact everywhere.
However, after contacting me around, I found that their hospital did not have any reserves.
It seems that it can only be sent from the capital or magical city.
But even if we use an emergency airlift, it will still take 6 or 7 hours.
It is simply that water from afar cannot save the thirst that is near.
At this time, Shen Hao thought of Ye Zhenzhen.
He has been involved in biotechnology and biopharmaceutical circles all year round.
Maybe she can find a way to get this special medicine.
Because Director Yu and Ouyang Yulu both inquired from various hospitals,
And Ye Zhenzhen's circle of relationships includes major pharmaceutical companies and biotechnology companies.
So Shen Hao called Ye Zhenzhen to explain the current situation.
"Okay, I understand. Give me five minutes and I will ask you in various work groups!"
But it only took about 3 minutes before Ye Zhenzhen called.
"I have a classmate who works in a well-known pharmaceutical factory. They happen to produce related drugs. He has helped me get 3 disposable injections. I will go over and get them for you now!"
"Okay, Miss Ye can do it. She has a wide network of contacts!"
"Well, I won't tell you for now. I'm driving to get the medicine. It's important to save people!"
PS: I beg you on your knees for flowers, evaluation votes, and monthly tickets. Is it true that no one is watching?
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